SUFFERING FROM TRIGEMINAL NEURALGIA AND FACIAL PAIN?
In July 2016, I spent 10 days in a hospital room writhing in facial pain that felt like someone was stabbing my eye with a 12" knife over and over. I tried surfing the internet looking for information on what I might have. It depressed and scared the hell out of me knowing that I might have this disease called Trigeminal Neuralgia (TN). A very rare disease. Your family feels helpless. The meds my doctor were giving me were not helping one bit along with the IV morphine. I could not eat, drink, touch my nose or eye, brush my teeth, and it got so bad I couldn't even swallow because every time I did, it was another knife in my eye. It is known as the worst pain known to humans. It's called the "suicide disease" and I know why.
The reason for this website is at the time, I wished I could have talked or emailed or seen someone who had been through this. It was like being alone on an island. No one understood what was going on or how brutally painful it is! Even the nurses have no idea and most doctors don't either! This is one disease there's no cause or cure and it's degenerative. It's not God giving this to you either. He will help you through it but according to the leading Neurosurgeon, it's a breakdown of your myelin sheath that is between your artery and nerves in your brain.
I wanted a website for others searching for help. There is a lot of information on this website that has helped me and others in my support group. TN warriors all over the world contact me with their battle. You are not alone! Call or email me at 949-248-3112 and talk to me about your situation. If you need a doctor or want to join a support group which I highly recommend, it's on here. Even if you are pain free at the moment or not, I would LOVE to hear your story. Perhaps you had a surgery, I would like to hear how it's going and what type of surgery you had. We are in a unique rare family together in this fight until a cure is found. Please contact me via the "Contact" page.
See "Resources" page for tons of info, such as support groups or doctors where you live. Please read my blog page for more details on my journey and what has helped me during the pain and for the past 5 years.
The best book out there on trigeminal neuralgia is called "Striking Back". It goes over EVERYTHING on TN from the best researchers and doctors in the world. And there is a newly release book by the Facial Pain Association. It's on my "Resources" page.
God is with you. You can't do this alone! Your spouse or loved ones do not truly know what you are going through. God does. He knows everything and is right there with you. Reach up in the fog and you will find that His hand will be there.
The reason for this website is at the time, I wished I could have talked or emailed or seen someone who had been through this. It was like being alone on an island. No one understood what was going on or how brutally painful it is! Even the nurses have no idea and most doctors don't either! This is one disease there's no cause or cure and it's degenerative. It's not God giving this to you either. He will help you through it but according to the leading Neurosurgeon, it's a breakdown of your myelin sheath that is between your artery and nerves in your brain.
I wanted a website for others searching for help. There is a lot of information on this website that has helped me and others in my support group. TN warriors all over the world contact me with their battle. You are not alone! Call or email me at 949-248-3112 and talk to me about your situation. If you need a doctor or want to join a support group which I highly recommend, it's on here. Even if you are pain free at the moment or not, I would LOVE to hear your story. Perhaps you had a surgery, I would like to hear how it's going and what type of surgery you had. We are in a unique rare family together in this fight until a cure is found. Please contact me via the "Contact" page.
See "Resources" page for tons of info, such as support groups or doctors where you live. Please read my blog page for more details on my journey and what has helped me during the pain and for the past 5 years.
The best book out there on trigeminal neuralgia is called "Striking Back". It goes over EVERYTHING on TN from the best researchers and doctors in the world. And there is a newly release book by the Facial Pain Association. It's on my "Resources" page.
God is with you. You can't do this alone! Your spouse or loved ones do not truly know what you are going through. God does. He knows everything and is right there with you. Reach up in the fog and you will find that His hand will be there.
What is Trigeminal Neuralgia? Trigeminal Neuralgia is a disorder of the 5th cranial nerve, which affects the face, eyes, nose, lips, teeth, gums, tongue, and scalp. Due to its painful symptoms and the general lack of knowledge about TN, it has become the focal point of myself and the Facial Pain Association. The goal is to spread the word and find a cure.
In the video below, I share a few words of some things that have helped me. I hope something on this website can help you.
In the video below, I share a few words of some things that have helped me. I hope something on this website can help you.
Need a support group? Click HERE
Need a Recommended Southern California Doctor? Contact me
Upper Cervical Chiropractor Doc Near You? Click HERE
Please visit Facial Pain Assoc for tons of great info or to look for a Doctor near you
Newsletters and more info- Go to the "Resources" Page"
View or download the Patient Guide
Need a Recommended Southern California Doctor? Contact me
Upper Cervical Chiropractor Doc Near You? Click HERE
Please visit Facial Pain Assoc for tons of great info or to look for a Doctor near you
Newsletters and more info- Go to the "Resources" Page"
View or download the Patient Guide
I prayed this over and over in the hospital one entire night of no sleep as the attacks were relentless. The next day, things improved and I continue to pray it every day. "Heal me, Lord, and I will be healed; save me and I will be saved, for you are the one I praise." Jeremiah 17:14
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